Retinitis Pigmentosa treatment in Canada: options, support and next steps

A diagnosis of RP can leave you wondering what is actually available. This page sets out the evidence-based options open to people living in Canada, the support services around them, and where experimental approaches such as stem cell therapy sit in the picture.

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retinitis pigmentosa treatment in Canada

RP care in Canada: where to start

RP care here usually begins with your family doctor or optometrist, who refers you to an ophthalmologist or retina specialist. Waiting times vary by province, so it is worth asking early about a referral.

Stem cell therapy is not an approved RP treatment in Canada. If you wish to explore it, we recommend doing so alongside, not instead of, the care described here. Stem cell therapy is still an experimental treatment. It is not approved by Health Canada or the US FDA for these conditions, and results differ from person to person. We cannot promise any particular outcome.

Getting the diagnosis right

An accurate diagnosis shapes every decision that follows.

Referral to a retina specialistAsk whether an inherited retinal disease clinic is available near you.
ERG and visual field testingConfirm RP and record a baseline to compare against later.
OCT imagingChecks the retinal layers and detects macular swelling.
Genetic testingIdentifies your gene and may open the door to specific treatments or trials.

Treatments with proven benefit

These are the options supported by clinical evidence today.

Gene therapy for RPE65

Voretigene neparvovec is approved in Canada for confirmed biallelic RPE65 mutations. It applies to a small share of RP patients, so genetic results matter.

Cataract surgery

Cataract develops earlier in RP and removing it can sharpen what vision remains.

Treatment of macular swelling

Drops or other medication can help when fluid affects central vision.

Vitamin A under supervision

May modestly slow decline in some adults, but only under medical advice because of toxicity risk.

Support available in Canada

Good support makes daily life easier at every stage.

Low-vision services and CNIB

Training, devices and community support for people living with sight loss.

Orientation and mobility training

Helps you move safely, especially at night and in winter conditions.

Driving and licensing

Provinces have visual field and acuity rules for driving. Ask your doctor early so you can plan alternatives.

Patient groups and trial registries

Foundation Fighting Blindness Canada and similar organisations share news about research and trials.

Our Medical Experts – Trusted Specialists

Eye Stem Cell Center brings together pioneers in stem cell biotechnology and highly experienced ophthalmologists to provide advanced regenerative eye care with compassion and precision.

Dr. Pallavi

Senior Consultant | Ophthalmologist & Eye Surgeon22+ Years Experience

Dr. Pallavi is renowned for her expertise in cataract and corneal surgeries. With thousands of successful procedures, she combines surgical precision with a patient‑first approach.

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Dr. Robin

Consultant Ophthalmologist & Eye Surgeon | MD, DO16+ Years Experience

Dr. Robin specializes in advanced cataract surgery, refractive procedures, and keratoconus treatment. His clinical excellence ensures patients receive world‑class eye care.

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Dr. Pawan

Associate Professor | Vitreo-Retina Surgeon10+ Years Experience

Dr. Pawan is an expert in retinal disorders, diabetic retinopathy, and advanced retina procedures. His patient‑focused approach ensures precise treatment and long‑term vision care.

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