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7 months ago
Retinitis Pigmentosa treatment in London: a practical care pathway
No single treatment cures RP in general, but London patients can use a range of NHS and charity services alongside private care. This page sets out a step-by-step pathway, from confirming the diagnosis to getting practical support.
Understanding Retinitis Pigmentosa treatment in London
Good care starts with a clear diagnosis, then treats complications, supports daily life and only then considers advanced options. Each step can protect independence for years.
Specialist inherited retinal disease services exist in London, and sight-loss charities such as RNIB and Retina UK offer information, helplines and peer support.
Step 1: confirm the diagnosis
A retina specialist usually combines these tests.
- Dilated retinal examinationA direct look at pigment deposits.
- ERGMeasures the retina's electrical response to light.
- OCT imagingAssesses the retinal layers.
- Visual field testingMaps the extent of side vision loss.
- Genetic testingNames the gene, which guides counselling and therapy eligibility.
Step 2: treat what can be treated
These options have clinical evidence behind them.
Gene therapy
Voretigene neparvovec is recommended for eligible patients with confirmed RPE65 mutations. It applies to a small subgroup only.
Cataract surgery
Cataracts appear earlier in RP, and removing them can improve remaining vision.
Macular swelling treatment
Medication can sometimes help where swelling affects central vision.
Vitamin A palmitate
Some studies show modest benefit in certain adults, but it needs medical supervision.
Steps 3 and 4: support and next options
Practical help and an honest view of research.
Certificate of Vision Impairment
Ask your consultant about registration, which can unlock benefits and local support.
Low-vision services
Magnifiers, lighting advice and mobility training.
Experimental options
Stem cell therapy is discussed only after examination, with risks explained.
Second opinion
Send records on WhatsApp at +91-9760013103.
Our Medical Experts – Trusted Specialists
Eye Stem Cell Center brings together pioneers in stem cell biotechnology and highly experienced ophthalmologists to provide advanced regenerative eye care with compassion and precision.
Dr. Pallavi
Senior Consultant | Ophthalmologist & Eye Surgeon22+ Years ExperienceDr. Pallavi is renowned for her expertise in cataract and corneal surgeries. With thousands of successful procedures, she combines surgical precision with a patient‑first approach.
Get ConsultationDr. Robin
Consultant Ophthalmologist & Eye Surgeon | MD, DO16+ Years ExperienceDr. Robin specializes in advanced cataract surgery, refractive procedures, and keratoconus treatment. His clinical excellence ensures patients receive world‑class eye care.
Get ConsultationDr. Pawan
Associate Professor | Vitreo-Retina Surgeon10+ Years ExperienceDr. Pawan is an expert in retinal disorders, diabetic retinopathy, and advanced retina procedures. His patient‑focused approach ensures precise treatment and long‑term vision care.
Get ConsultationFrequently asked questions
Is there a cure for RP?
Not in general. One gene therapy is available for a specific genetic type only.
How quickly will my vision change?
It varies widely, even in one family. Regular monitoring shows your pattern.
Can I still drive?
That depends on your visual field and acuity. Your consultant can advise on DVLA rules.
