Stem cell therapy for Rod and Cone Dystrophy in Canada: a guide for patients and families

Rod and cone dystrophies are inherited conditions in which both types of light-sensing cell lose function. Because they overlap with retinitis pigmentosa, many families in Canada find the terminology confusing. This page explains the difference, and how stem cell therapy is assessed for people with these conditions.

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stem cell therapy for rod and cone dystrophy in Canada

Rod-cone, cone-rod and what the names mean

In a rod-cone dystrophy, night vision and side vision fade first and central vision follows later. In a cone-rod dystrophy the order is reversed, with glare, poor colour vision and loss of central sharpness appearing early.

The ERG pattern and the genetic result decide which label fits, and this affects the likely pace of change. Stem cell therapy is still an experimental treatment. It is not approved by Health Canada or the US FDA for these conditions, and results differ from person to person. We cannot promise any particular outcome.

Symptoms that often bring people in

These are the complaints we hear most often from patients and parents.

Light sensitivityStrong glare indoors and out, especially in bright snow or sunshine.
Colour confusionColours look washed out or are mixed up.
Slow adjustmentTaking a long time to see after moving between bright and dim spaces.
Reading difficultyCentral blur that makes small print hard to follow.

What the assessment looks at

Several tests are combined to build a full picture.

Retinal function

A full-field ERG separates rod and cone responses.

Retinal structure

OCT and autofluorescence imaging show which layers are thinning.

Genetic findings

If you have a gene report, we read it with your family history.

Family history

Who else is affected helps identify the pattern of inheritance.

For families and children

When a child is affected, parents need guidance on school and long-term planning as well as medical questions.

School accommodations

Involve your school team early for large print, seating and extra time.

Decisions for minors

Any decision about therapy for a child needs careful discussion with both parents or guardians.

Low-vision services

Your Canadian low-vision service can assess and supply suitable aids.

Planning ahead

Genetic counselling helps families understand risk and prepare.

Our Medical Experts – Trusted Specialists

Eye Stem Cell Center brings together pioneers in stem cell biotechnology and highly experienced ophthalmologists to provide advanced regenerative eye care with compassion and precision.

Dr. Pallavi

Senior Consultant | Ophthalmologist & Eye Surgeon22+ Years Experience

Dr. Pallavi is renowned for her expertise in cataract and corneal surgeries. With thousands of successful procedures, she combines surgical precision with a patient‑first approach.

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Dr. Robin

Consultant Ophthalmologist & Eye Surgeon | MD, DO16+ Years Experience

Dr. Robin specializes in advanced cataract surgery, refractive procedures, and keratoconus treatment. His clinical excellence ensures patients receive world‑class eye care.

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Dr. Pawan

Associate Professor | Vitreo-Retina Surgeon10+ Years Experience

Dr. Pawan is an expert in retinal disorders, diabetic retinopathy, and advanced retina procedures. His patient‑focused approach ensures precise treatment and long‑term vision care.

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