Stargardt disease and Macular Dystrophy are uncommon but life-threatening inherited eye diseases that mainly involve the macula — the central region of the retina used for clear, straight-ahead vision. In Indonesia, although awareness of the diseases is still poor, the incidence is increasing incrementally due to better diagnosis and genetic testing.
Children and teenagers with Stargardt illness have vision problems. This hereditary disorder is passed down from parents to their offspring. Because of the death of special light-sensing cells called photoreceptors in the macula, people with Stargardt disease have reduced vision.
Patients typically have trouble reading, their vision deteriorates, and their color vision is compromised. Macular dystrophies such as Best disease and pattern dystrophy also show similar symptoms, albeit they appear at different times
New developments in the stem cell therapy hold great promise for the treatment of degenerative retinal conditions such as Stargardt and Macular Dystrophy. Stem cells, especially retinal pigment epithelial (RPE) cells isolated from human embryonic and has shown the capacity to replace dead cells in the retina.
Research and clinical treatments are starting to gain attraction in Indonesia. Injecting healthy RPE cells into the retina, can help in restoring visual function which is a part of stem cell therapy. The regenerative therapy may partially cure the disease, but it does slow progress considerably and even restore partial vision in some sufferers.
An increasing number of centres, such as the eye stem cell centre in Indonesia, are now starting to provide experimental therapies and consultations for patients with these rare conditions. These centres specialize in providing sophisticated therapies according to international standards of safety, and frequently partner with international research centers to provide patients with the best possible latest treatment available.
Currently, Stargardt and Macular Dystrophy is incurable but stem cell therapy promises to change all that. Indonesia is slowly progressing as a hotspot for cutting-edge eye care treatments with greater expenditure on healthcare services and public education. The eye stem cell centre in Indonesia serves as a ray of hope for improved vision and enhanced lifestyle for those families and patients who have lost their hope.